BEING CRAZY IS NOISY

crazy.jpg

John Sterns is diagnosed with schizoaffective disorder (a co-diagnosis of schizophrenia and bipolar disorder), chronic depression and chronic anxiety. He describes a lifetime of fighting demons ...

Special to MORE INTELLIGENT LIFE

I.  I hear voices (“auditory hallucinations”, technically). They come from all directions and fill my mind with hateful, self-destructive demands. One comes from above the crown of my head and commands, “You must die”. Another rests on my left shoulder and says, “You should be dead”. A third whispers insidiously into my left ear, “Kill yourself”.

But the most persistent and long-standing of my voices, which began when I was eight years old, pounds on my left shoulder like a jackhammer, repeating, “I hate myself. I hate myself. I hate myself. I hate myself. I hate myself. I hate myself. I hate myself. I hate myself.” It never ends. My response to this particular voice was to develop a permanent cringe in my right shoulder. I am now spending thousands of dollars to correct compressed discs in my neck that have caused me chronic pain for nearly 30 years.

Before my treatment, hospitalisations and incarcerations, these voices were all separate and distinct, with individual sounds, tones, rhythms and pitches. Now they are one voice--my voice. Once a chorus, they have become a soloist, though attacking me with the same message. Treatment has meant that I have finally found a “self”, a “me”, after four decades. But the me I’ve discovered is now my enemy.

 

II.  Not all voices are demonic. I once met a man who heard happy voices. I was walking down the hall of the locked ward in the hospital’s inpatient facility (“Club Head”, we called it) and a young man with dark curly hair approached me, staring into space, smiling, giggling, laughing. He turned his head to whisper to someone who was obviously not there. We passed each other and I heard him chuckle and say, “That’s very funny.” I knew he wasn’t talking to me–I hadn’t said or done anything–and I knew he was psychotic (I recognised the symptoms). At dinner that night I asked my roommate about the young man. “Oh, that’s Kevin," he answered. "He hears happy voices.”

I immediately hated Kevin. I have been tormented with psychosis and delusions since I was four years old. To meet someone decades later who apparently relished the very same symptoms that have haunted me all of my life felt unfair, an abomination. I avoided Kevin. When I did run into him I wished him the worst voices--the kind that would finally push him over the edge. I wanted him to fall into the endless pit of suffering and pain where I have spent nearly every day of the last 40 years. This is wrong, I know, but I do not yet understand how to be both crazy and compassionate.

III.  During one hospital stay, we were encouraged to use art to express how we felt about ourselves, our illnesses, our pasts and futures. As a child I hated art classes. I was a disaster: my chronic anxiety led to constant sweating, which caused paints, pens, crayons and coloured papers to smear my young face, hands and clothing. The result was often a sickly green-grey mess, a melted miasma. By the third grade I received a free pass from all art classes through the remainder of my school years.

Art therapy required me to sit around a table with seven other inmates and a social worker, and stare at a blank piece of paper and a torn box of broken crayons. I didn’t want to draw anything. In fact, I didn’t want to think about my illness--not my past, my present and certainly not my future. After an hour the social worker announced that art therapy was done and we had to hand in our work. I turned in my blank sheet of paper and walked to the cafeteria for lunch. I told myself I had made an existential statement. Blank was as good as it gets.

The next day brought another art therapy session and once again I turned in a blank sheet of white paper. That afternoon I was called to meet with the social worker who guarded the art therapy class.

“John,” she began ominously, “you are failing art therapy.”

I misheard her, clearly. How can one fail art therapy?

“Unless you make more of an effort,” she continued gravely, “you will not pass. You will not be released.”

The conversation was obviously over.

I returned to my bedroom and considered this exchange. Being called a failure did not surprise me. I am a failure--that I already knew. It was the "You will not be released" part that grabbed my attention. I wanted to be released. Club Head has its advantages: shelter, a bed, meals and the suspension of disbelief for all the problems I've caused, the troubles I face, and the remorse, disappoinment, disgust and fear I will feel for hurting others. But I missed my wife and son, so I resolved to make more of an effort during art therapy over the next few days.

So I draw. And draw, and draw some more. Colours fill the pages and I am the most prolific crazy art-therapy inmate ever to grace the hospital floor. Over the next two days I draw and colour geometric shapes, which I had calculated would be safely "meaningful". My favourite drawing was a rough outline of the state of Alaska that I call “All-I-Ask-Ya”. It has the city “Nome” plotted on the map.

But at the end of each class, I felt sad. The drawings meant nothing to me. I was not using art to express myself. I didn't even know what that meant.

After three days I was told that I had passed art therapy and would be moved to the open ward. A victory. I didn’t tell them that I still had auditory, visual and kinesthetic hallucinations, paranoid delusions and daily thoughts of suicide. That would mess things up.

 

Picture credit: lepiaf.geo, *_Abhi_* (both via Flickr)

(John Sterns lives with his family in California, takes five psychotropic medications daily and works as the marketing manager for a leading American commercial real-estate brokerage firm.)

 

ISSUES & IDEAS  

Comments

your posting


OMG- I see myself in your words. I have what I call an inner dialogue that I sometimes talk out loud to shut them up. I find that if I talk over the dialogue, I squelch it. I know it is strange, but haven't equated it to any mental illness. I am however disgnosed with GAD (general anxiety disorder), SAD, and ADD.I am also a tad dislexic. I take prozac, clonazepam, and alprazalom, and lately they are not effective. I see a shrink who is the head of the department at our local university hospital, and he specializes in this stuff. He needs to see me soon,because he has noticed a spike in my usage of meds. Of course, I work in financial services and it is not in a fun department.

Sense of humor is coping. It is art. Even though unlike you, I am an artist, you are correct. If YOU don't understand it, then it means nothing to you. Just as phrases like buckle down and pay attention meant nothing to me in the 3rd grade.
I asked my shrink, how did I get through school? He tested my IQ with some Duke University questionare, and My range is 133-147. Nobody is an exact number apparently. I need to talk with you via email some more. I intend to bring up my inner dialogue with my shrink the next time I see him.
Thank You John. This is enlightening, and I don't feel so all alone in the world.

-your friend always I will email you personally.

My "crazy" husband


Of course, I am heavily biased in favor of this piece, because the brave and wonderful author is my husband, whom I love dearly.

Anyway, I think my wonderfully brave husband, John, makes some very important points that are useful for the general public to understand. (Oh, when I'm talking about the general public, I'm talking about people like me, the allegedly "non-crazy" people.)

First, John describes having symptoms at a young age. Most "experts" say that the onset of schizophrenia and other mental illnesses begins when people are in their teens and 20s.

I question that.

From my husband's experience, and from what I hear more and more from on-top-of-it clinicians, people eventually diagnosed with these illnesses might have been dealing with these symptoms for a long time. Since childhood. Early childhood. These kids and adolescents just don't know how to talk about it. They didn't have the language to express it when they were younger. And then, as they get older and more concerned about peer relationships, they are afraid of being seen as "not normal."

And, of course, there is the stigma and fear of coming out as having a mental illness.

Second, my husband shows that it is possible to have a seemingly devastating diagnosis like schizoaffective disorder or schizophrenia, but to lead a productive, and perhaps even happy life. Most people assume that people with schizophrenia--or with related illness-- like my husband, are doomed. To not work, to not function, to be in and out of hospitals, to be zonked out on meds. Sure, the statistics and the reality are a bit scary, but with proper treatment, family support, and the affected person's ability to accept treatment, amazing things are possible.

The brain is a mysterious and infinitely complex organ, and scientists are just beginning to understand how it works, how sometimes it misfires, and how to make things right.

Not only I found the article


Not only I found the article very interesting, but the thing that struck me the most was its utter lucidity. How can one be in so much turmoil and yet be able to write such beautiful as well as clear, concise, and penetrating prose? The answer is, one can, and maybe the moral of the article is that one should not ask this question in the first place. Better still, perhaps the 'crazier' we are, the more lucid we are and that in itself can be the bane of our noisy lives.

Very interesting


This was an exceptionally interesting article, and the editors of Intelligent Life should definitely consider doing a full story for publication in the main magazine on this subject, based on this article.

Mental illness is something that often breeds prejudice and discrimination. Is it not right that a publication called intelligent life should contribute to bringing this issue to a wider public so that people can be properly informed?

Being Crazy Is Noisy


Thank you for reading the article and for your insightful comments. I find that the "lucid" part of my does, in fact, make the "crazy" part more difficult and more painful. The result is that I constantly need to pretend to be normal in every situation - raising my anxiety, pushing my depression and feeding my delusions and hallucinations. Again, many thanks for reading and for commenting.

Being Crazy Is Noisy


Thank you for your note. Stephen Hinshaw and others have written an excellent book on mental illness and stigma. I highly recommend it. I also recommend The Center Cannot Hold - another writing by someone with schizophrenia. It is a moving, intelligent and revealing book that speaks the truth. For myself, I know I stigmatize myself, but I'm learning not to do that as much. Perhaps I can learn that through writing. Again, many thanks for reading and responding.

Good article.


As a commenter said, very lucid! I'm wondering if there's been any attempt to apply the meditation techniques of the different schools of Buddhism (including Zen) to these problems. The different schools emphasize techniques to "quiet the constant chattering thoughts" of a "normal" mind. I wonder if they would also help with the "voices".

New book of possible interest


Your essay really caught my eye because it rings so true and mirrors the confusion and agonies so many others with your diagnoses must face. For that reason, you may be interested in my recently released biographical novel, Broken Saint. It is based on my forty-year friendship with a bipolar man, and chronicles his internal and external struggles as he battles for stability and acceptance (of himself and by others). You can learn more about the book at www.eloquentbooks.com/BrokenSaint.html.

Mark Zamen, author

Being Crazy Is Noisy


Mark, I look forward to finding and reading your book. It sounds fascinating and something that will be helpful to all people affected by mental illness. I think our stories need to be told again and again and again. Thank you for reading and responding to my piece. John

Thank you for your article


Thank you for your article. I love reading things by and about people who have this affliction because it helps me to understand my mother. I grew up in a veritable mental institution (Mother bi-polar with numerous emotional problems. Dad a moderately severe Narcissist). For me crazy is normal. Normal, whatever that is, is the weird state. I wouldn't want to relive my childhood, but at the same time I wouldn't change it either. I now feel it was a blessing to have crazy parents. It made me more tolerant and taught me gave me a wider perspective. It taught me to see that with hindsight sometimes "crazy" isn't crazy at all and sometimes "normal" is just plain crazy!

I thought your article was an extract from a book and was disapointed to find it wasn't. I wanted to read more. I wish you healing and mental quiet!!!!

Thank you.


Thank you, John, for writing this. I really value reading about the experiences of people who've been diagnosed with conditions like schizophrenia, particularly when written in their own words. So much "othering" is done to try and convince us that there is a clear line between those who are "crazy" and those who are "sane", when many of pass back and forth over that invisible line throughout our lives, perhaps even during the course of a day.

I'm surprised, but not really surprised, by the early beginnings of your first voice - as Martha says, the "typical onset" is supposed to be late teens/early twenties. Like Martha, I suspect that many people have earlier experiences of hearing voices that are not taken seriously (kids are supposed to have vivid imaginations, right?) or explained away by diagnoses like ADD. Perhaps it is that people start acting out in ways that others find disturbing in their late teens and early twenties, or that we do find the language to start talking about it.

great read


Thank you. What an elucidating article! I had no idea someone with this illness could be a productive member of society. I marvel at how you can maintain a job and a marriage while dealing with these voices. I'm wondering if you can tell us (maybe in another essay?) how the meds work. Also, do you ever want to hurt yourself or others? (And if so, how you deal with that.) And finally, how do you summon the strength to get through every day? What are your coping mechanisms?

I feel your pain


I do not want to post here, but I cannot find an email address for you. Please contact me at the one I passed to you.

Crazy


It's my guess that most people would never be this authentic. That would be crazy.

Fantastic


This should definitely be made into a longer article, the author is refreshingly open and direct about his journey through life and struggle with mental illness. Wish him the best, and to please continue writing, and often.

thank you


Thank you, John and Martha, for sharing your private pain and victories with the "general public." I wish you all the best, continued healing, and a long and happy life together. I second the request for a longer article or perhaps even a book. And when you do write that memoir together, put me on the publisher's mailing list so I can buy a copy.

Is this the same John Stens


Is this the same John Stens charged with defrauding Humbolt State University? http://www.northcoastjournal.com/062702/cover0627.html

I have worked for twenty years with mentally ill inidviduals, and his wrting strikes a decidedly false note. I would caution anyone taking this piece at face value.

Is This The John Sterns


I am a psychiatrist and clinical psychologist who worked with John immediately after his release from the psychiatric unit in Humboldt County. I can confirm for you that this is the same John Sterns who committed crimes while working at Humboldt State University. Using information from the Humboldt County file and in subsequent conversations with his first therapist, we quickly confirmed that John has chronic depression, chronic anxiety, schizophrenia and possibly bipolar disorder. The symptoms he describes in this article are not unusual for someone with his set of illnesses. The early onset of the illnesses is also not unusual given John's stressful childhood and other factors unique to his situation. I have worked as a psychiatrist for more than 25 years, so I am interested in what the writer of this note does in working with people with mental illness and what professional qualifications he/she has. I am saddened that the writer chooses to undermine John's credibility, especially since he worked so hard and truthfully with the police and has led an uneventful life since that period. It is too easy to stigmatize and scapegoat people with mental illness as well as those with criminal records. Although John did not read the press articles about his case at the time, I did and I hope we have moved past the ignorance and half-truths that filled those articles, along with the lack of responsibility-taking from the university for its part in the episode.

Julie R. Waterman, M.D., Ph.D.

I'm so glad to learn that


I'm so glad to learn that there are other intelligent and coherent people out there with schizophrenia.

I'm 21 years old and I've had voices in my head for as long as I can remember. I've suffered from chronic depression, terrible anxiety, and debilitating social phobia for years.

There is a history of mental illness in my family. There is schizophrenia on my father's side and Tourettes Syndrome on my mother's. I do not know which I have- perhaps both.

Though I got my license at 15, I didn't start driving until 17 due to the fact that I have a horrible urge to swerve into oncoming traffic whenever I see a semi in the opposite lane. I have numerous tics like this that are exceedingly difficult to suppress and are probably linked with Tourettes.

The voices are gone at the moment. They tend to come and go, usually reappearing during times of high stress. Sometimes my vision goes dark, I get dizzy and slightly nauseated, and I will seem to go into what feels like a waking dream. When I was a devout Christian, I assumed I was having visions from God. This was quite a delusion, and it was difficult to keep convincing myself that it was logical, as the "visions" were nonsensical and inexplicable. I still do not know what this symptom means.

I cannot function in society. Though it's easier now than it was just a few years ago, I'm still terrified of people and have difficulty communicating effectively. I blurt out inappropriate things, and I have problems determining just what to say or not to say.

The biggest problem that I have is that no one believes that there is anything wrong with me. I am an INTP with an IQ of 140, and I'm told that I am a strikingly talented artist and writer.

"You should have gone to college," they say.
"Why don't you have a job?" they ask.
"You just need to motivate yourself," they say.
"Why are you marrying a crazy person?" they ask, "You could do so much better than that schizo."

I can't even manage to keep my house clean. I take care of my baby and try to maintain what sanity I have. Medication might help. However, without medical insurance and with no one who is willing to agree that I have a problem, how could I get a diagnosis? I hide in my house, living in fear, often wondering why I even exist if existence is so pointless.

My fiance has schizophrenia. We lived together for two years before my neighbor told him that he had no way of knowing that he was the father of my baby, which sent him over the edge. It was only after I thwarted his attempts to put his hand in the blender, call his job to warn them that something terrible was going to happen, and take the baby and run away from my house that I finally took him to the emergency room. He was taken to a behavioral health clinic in handcuffs and straps by a pair of policemen, and though they told us we wouldn't have to pay for any of it, we're still facing the $450 emergency room visit bill.

That incident was traumatic enough. I would not care to be on the receiving end in that situation. I might be able to make something of myself, but in order for that to happen, I would need to stop my symptoms. Getting medication would involve more caseworkers. It would mean more bills we could not pay. I know that I would be unable to prevent myself from lashing out with sarcasm and cutting remarks at any psychologist that came near me, probing, puffed-up, and certain that no matter how intelligent and coherent I might be, only they could tell me what was wrong with me and my input on my own condition is utterly invalid.

Then someone would try to say that two schizophrenic parents would be unfit to raise a child, and they'd try to take my baby away.

Ugh.

Is this the same John Stens


Julie,

Your rebuttal of the question of whether this is the same John Stens who apparently criminally defrauded a University reads more as a self-interested attack rather than a true defense. I went to the link and read the information. Then I googled and read more. A program was destroyed. John did it, was arrested and convicted for his actions.

His remorse is something that I can't personally judge however, you lost me completely by stating: "along with the lack of responsibility-taking from the university for its part in the episode." John bears the sole responsibility for his actions. Blaming the victim is reprehensible.

John undermined his own credibility by his crimes and his subsequent statements regarding those crimes. His posting about his experience with his mental illness is thoughtful, informative and interesting, but it neither obliterates or excuses his criminal history.

I've suffered from chronic


I've suffered from chronic depression since I was a little kid. Although I don't hear voices, I do (or use to) have unending thoughts of suicide. They were always in my own voice. Like you John, this has lead to my neck, jaw, and back being messed up, due to my constant cringing. Thankfully now I'm on medication and for the first time ever I don't go to bed every night hoping I wouldn't wake up in the morning. It's taken me awhile to realize that my "normal" wasn't everybody's "normal". Thanks for the great article.

Lucidity in Mental Illness


First let me say that I enjoyed this article very much. My brother has been diagnosed with manic depression. In the height of his mania he too deals with voices. He always was a bright boy so off his meds he has brilliant ideas and can produce a believable story down to the smallest detail. When he is medicated he fights depression on a daily basis. He switches back and forth because if he goes off his meds there is a time period that he feels "normal" or like his old self. However, when the manic takes over he can end up in Los Vegas in a hotel room that isn't his taking a shower. He has learned when to sign himself in to the local hospital. It has saved his life more than once.
My opinion is that we all hear voices. Some are more prominent than others. It's all up to the hot wiring in the brain.
Want to say hello? My website is heartattacklifegoes.com

Phoney, both of them


If anyone wants to really look into the history of these two people, you will see that they like to promote a lot of fluff about this, capitalizing on what they claim is part of their history that of course no one can easily research. Most of the money John stole was never repaid. Where did it go? Martha dangerously fancies herself as a mental health expert now and has written romance type novella fiction about her experience. Interesting that "Love Interrupted" isn't online anymore. These two ere living the high life off John stealing. He hurt a lot of people. I'm not buying the psychology defense.

If "Julie Waterman" truly treated this man, why is it you cannot find this person on a Google search. And who is the 'we' in "we quickly confirmed." And, maybe Dr. Waterman can tell us how many people with this disorder commit crimes and fraud?

["This was the most complex investigation I've ever done because of the many tentacles it had," Dewey said. "I never knew how long each tentacle was going to reach."

Dewey said he relied on standard investigative techniques, though he did call upon outside expertise to help with more abstruse accounting issues.

He cautioned that the apparently broken figure just taken into custody may not be as vulnerable as he appeared. "I can't analyze mental illness, but I can tell you this: He's a chameleon," Dewey said.

http://www.arcataeye.com/old/top/020416top02.shtml]

I am a professor at Humboldt


I am a professor at Humboldt State University. It's obvious to me that the author of the attacks on John and Martha are written by Judy Hodgson. Before I respond to Judy's invective I want to respond to the writer who believes that stating the university should have taken more responsibility for the situation is "blaming the victim." The situation is more complex than the article cited and proves Julie Waterman's point that half-truths and ignorance were predominant (and are still predominant, Judy) during that time. University administrators had purchased a building that led to a financial and community relations disaster; they alienated the Arcata community so much that a much-needed academic building wasn't built; and they completely tore apart our athletics program. Oh, and they ignored numerous attempts by a Foundation employee to have John's actions investigated. Yes, the university bears some responsibility for this, although I agree that John must take most of the responsibility and all of the responsibility and consequences for his own actions.

As for Judy, you anonymously attack John and Martha and provide no new evidence about anything. You claimed in earlier articles that you had read all of the court documents. Well, if this is true, then you would know that John's crimes were based around receiving reimbursement for false meals and travel. In other words, he had already spent the money and my guess is that he used what he stole to pay back his credit cards. If he didn't he was an idiot. Additionally, you try to give yourself false credibility in the mental health field, which does not help your own case. You might have personal experience, but you are not a professional and have no training.

My story is that I worked with John and he directed $30,000 of unrestricted money to my program that we had matched by a $210,000 federal grant that significantly helped our program. Nothing he did in relationship to our program was a crime. Regarding his other activities, I'm not saying that what John did was good; it was obviously criminal and bad. But I am more approving of the use of unrestricted funds for academic programs than for building a $150,000 meeting room for one of our former vice presidents.

Judy, end your hypocrisy and desperate attempt at belated credibility and childish fame.

J.

My son is bipolar and a felon


I'm grateful for someone like John talking about his experience being mentally ill.

I briefly met John through our local NAMI chapter. I knew he had something like what my son had, and he said something about going to jail. We never talked about that part of his life a whole lot. If you spend time with people with mental illness and their families, you know they all have stories.

My son was diagnosed bipolar when he was 19 but he always had trouble in school or getting along. I even remember when he was a baby. He was different from my other kids. The way he cried was different, even when he was a baby. More intense.

When I met John, my son was in our county jail for drugs. He self medicated because he heard voices sometimes. That never made much sense to me. Maybe he has what John has. Then my son got involved in a robbery and an assault and he had to to prison.

He has a mental illness but his lawyer said he couldn't use it as a defense because of the way the laws work. My son says he had a really good doctor at San Quentin. You hear things about how bad the prisons are when it comes to inmates health, but my son got good care.

My son is out, takes his meds and lives near us. He goes to school and works. He says he feels right about things. Maybe things will get better. We hope. We always hope.

The more people talk about having mental illness the better. I'm grateful that John wrote what he wrote. As a mom, I learned things about what it's like from reading his essay.

Thank You


Thank you to everyone for writing comments about my article and for expressing a variety of views. I really appreciate it. Best regards, John Sterns

It was quickly evident to me


It was quickly evident to me reading your piece that you are extremely bright but since I know a lot of bright people, was not impressed by that. What did impress me is your skill, talent, art in writing. The article was fascinating and made me want to know more about you or if this is a character, then the character.

If this is truly you and not just a character, then you're not only bright and talented and brilliantly gifted, you are amazingly brave. Thank you......Jerry

I honestly have to wonder


I honestly have to wonder how many of these responses are written by Martha Ross, a journalist for Diablo magazine, and/or John Stern himself. All these various folks are not immediately responding to stand up for Stern and Ross. It doesn't matter if other people were at fault at the University and who cares about the politics. The fact is that John was disingenuous when writing this article. He's a criminal who got off with a very minimal sentence because he claimed he was mentally ill. How many white collars crimes to this extent have you ever seen someone get off because of this? He knew what he was doing and I suspect his wife did, where did she think all the extra money was coming from? I'm sure she is sitting at home monitoring this article. Get a clue as to who the real posters are here.

John is not amazingly brave,


John is not amazingly brave, he is building a case to justify his crimes or write a book or become and expert in mental illness. Wait and see. He's using you all here and I doubt he has one iota of evidence to support what he says here.

Ignorance Continues


The ignorance about the Sterns case continues with the people who post these comments condemning him. His crimes were real and he doesn't deserve any praise, but the "extent" of his crimes were relatively minor given the current scandals in higher eduation financial crimes where the figures go well into the hundreds of thousands of dollars. The money Sterns stole totaled less than $50,000 and his mental illness was more than a "claim." And someone no less than the university's public information officer blamed the university's administration for their part in the fiasco - publicly and repeatedly. The anti-Sterns posters need to read the police reports, the psychiatric reports and the CSU auditor's report (which places a tremendous amount of blame on the university and its former top administrators) before they continue propogating the ignorance that our local media whip(s) up about the case. I worked with Sterns. He was obviously slick - too slick, which should have been everyone's first clue that he was a cheap con artist. A lot of people fell for his act which means a lot of people were betrayed. Perhaps what's really going on with the anti-Sterns posters is that they are venting their anger at being too stupid to see through the smoke and mirrors.

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